There is a great deal of information on the
Internet related to Childhood Cancer. Much of it is good, but parents must
be aware that there is also some very dangerous stuff out there.
PLEASE: be very, very sceptical of any site that you find that claims
that conventional medical treatment is inappropriate, or that they have a
new "miracle" cure for cancer. Apart from the potential damage to
your financial state, if you pursue these sort of "cures", you may
be putting your child's life in peril. If you find something that seems
credible to you, you MUST discuss it with your doctors before taking any
action.
The following are some of the links to websites which you may find useful.
Please contact the webmaster if you have other suggestions for useful links.
The National Alliance of Childhood Cancer
Parent Organisations (NACCPO) - The overall parent body to which
COPARS belongs.
The International Confederation of
Childhood Cancer Parent Organizations (ICCCPO)
- The International version of the above!! (And you thought COPARS was a
weird accronym)
Captain
Chemo -This is a fun site. Join Captain Chemo as he battles to fight
Tumour Cells and learn a bit more about Chemotherapy and Childrens Cancer.
-A
fantastic never ending web site of advice and fun for Parents, Patients,
Families and Friends of Children with Cancer. It grows as you send in your
experiences and ideas. A fantastic resource!! look up the Fun Glossary and
the You Know your Are A Parent with Cancer When...
The United Kingdom Children's Cancer Study
Group (UKCCSG)- Includes the indispensable "A Parents Guide to
Children's Cancer"
The Childrens Cancer Web
- Another great resource with backgound on various Childrens Cancers and
links to lots of Personal Sites put together by Simon Cotterill a Research
Associate at the University of Newcastle.
Addenbrookes Hospital Website
The Sick Childrens Trust -
The Charity which runs the fantastic Acorn House. On site accomodation for
families with children undergoing treatment at Addenbrookes.
Siblinks - The website for Siblings
of Cancer Patients aimed at 13-25 year olds.
The Make a Wish Organisation -
Children with Cancer and their families go through so much so why not
contact this organisation about having a special Wish Granted. They have a
very simple purpose - " To grant the Wishes of Children aged 3-18
suffering from Life Threatening Illnesses"
Cancer Research UK
St Baldricks Day - The only thing
to be doing on St Patricks Day is to have your head shaved for Children's
Cancer. Have a go for COPARS if you dare!!!
Childhood Cancer
Awareness - Wear a Gold Ribbon to Support Childrens Cancer Awareness.
The Association of Cancer Online
Resources - A huge online resource including mailing lists and info of
every type of cancer.
Ellie's Trust - Ellie's Trust was
founded on 20th February 2003 to remember Ellie Savage who died of a brain
tumour on 11.11.2002. The main aims of the Trust are to help other children
living with cancer, to provide support and information for their families
and to raise money for research into brain tumours.
Caring Bridge - Some
parents find it useful to keep family and friends upto date on how their
children are doingusing the net . This site helps you build a simple website
free of charge in minutes which will include a diary, guestbook, small photo
album and a counter. It can be password controlled so only family and
friends can read it. Checkout an example of Joshua Sheard's page by clicking
here.
Joshua Sheard's
Neuroblastoma Website - One COPARS family story.
[This list is a suggested example of sites only and not meant to be an
exhaustive search on good sites, nor does it endorse any of these sites.
Caution and discretion is advised when using the internet for research
purposes]