This site is a non profit support/informational site and has been set up  Darren (UK).

This support group is run on  a voluntary basis to provide information and support to patients, partners, carers or friends of people with Marfan syndrome

The information provided on marfan sydrome uk, is  designed  to
support, not  replace, the  relationship  that  exists between  a  patient/site  visitor  and  his/her  existing  Doctor.
.  
Whilst We  try to assure information given is correct --- Please be aware that,Myself am not medically trained/qualified . If you are unsure about a medical problem please Always Seek Medical and Professional help .  
Also Please check with your GP/GI before trying anything new, stopping or changing any of your Medications/Diet. Although I will try my best to answer any questions please remember
I am not a DOCTOR . What we say comes from our own experience and from what we have learned from others and may not be right for you.

Upon Joining marfans syndrome uk- Any medical or personal information given is disclosed at your own risk and is not required to become a member of the site or message board. Personal information which is disclosed will be stored within this site only and is held confidentially within your own profile of which you have total control. You may choose what and how much to disclose and have the option to hide or reveal.  You may also choose to join with a pseudonym name only.

E-mail addresses are optional and again not required to post messages or become a site member. Any personal information or e-mail address that is disclosed will not be used, sold or passed on by the owner or assistant managers of this site.

Please Note that I, or any site member, shall not be held responsible, liable, directly or indirectly, for ANY form of damages whatsoever resulting from the use (or misuse) of information contained in, or implied by, the main site documents, content, or message board posts. The information contained within these pages are presented expressly for informational/support purposes only.
Where information within the site has been copied straight from another source, a link to that relevant site is placed on that page.  A separate links page is also held to any source we have read, researched or included, in part on this site and can be clearly viewed.
Again this information is for information/support only and should not be substituted for advice given by your own Doctor.

Any advertising appearing within this site is not there for our personal monitary gain and is not endorsed by the site manager.