Useful Links
Marfan Forum - Great support forum for marfan syndrome and other connective tissue disorders.
Living With Marfans - This is an information and support group.
Crohns is Crap -This is a support site for people with crohns disease or bowel problems.
BBC news UK - The parents of a 6ft 4in 13-year-old girl from Rutland have called in the police after bullies used an internet chat room to threaten her
Marfan Support and Information in NSW - Marfan site based in australia. Run by Trudy
www.healingwell.com - Features health articles, medical news, doctor-produced video webcasts, community message boards and chat rooms, professional healthcare resources, email, newsletters, books and reviews, and resource directories on diseases, disorders and chronic illness
The Marfan Trust was set up in November 1988 to fund research into the cause and possible prevention of Marfan Syndrome and to assist with patient support. The Trust has already funded a research fellow who made a major contribution to the discovery of the gene on chromosome 15 responsible for this disease; a research nurse, who worked on a project regarding pregnancy-associated risks in Marfan Syndrome women; and seven students working for higher degrees who have helped to discover gene mutations in U.K. patients, which were contributed to the international gene map.
AC Groundcare - Landscape Services & Garden Maintenance - Excellent Cheshire based company.
Hardy Exotics Uk - A forum for people with a passion for exotic or tropical plants who want to try them in UK gardens.