As an ex-psychiatric nurse and having had
first hand experience of dementia within the
family, I welcome Malcolm Goldsmith's
handbook sub-titled 'People with dementia
and the local church'. Any book or advice
which helps ordinary members of the clergy
or congregation to accept people who are
'different' is appreciated, but I fear that in
some congregations this acceptance may be
a long time coming, for we all know congregations
who dislike a child running around or
making a noise, so how much more difficult
to come to terms with an adult who wanders
around, gives orders, shouts at the preacher,
is incontinent and may become aggressive
when approached to behave.
Dementia takes no account of social class
or intellectual ability, it does not discriminate
as we are prone to do and it could strike you
or your family at any time, no matter how
much money one has to pay for private treatment,
for the sad thing is that no treatment or
cure is yet available.
Fr Goldsmith understands these problems,
having been a priest for over forty years
and latterly a Research Fellow within the
Dementia Services Development Centre at
Stirling University. He is rightly insistent
on the challenge not to see a person with
dementia, but a person with dementia, and
likewise nursing homes, as opposed to nursing
homes, and I guess that a goodly number
of us would have put the stress on the other
without having really thought about it.
Throughout the book there are chapters
that concern us all; to refer to a few: 'The
response of the local church' subdivided
into sections like, 'What about the faith of
the caregivers', 'What brought this about?',
'Is it a punishment from God?', 'The experience
of dementia', 'Communication and
Dementia', 'Family Carers' and so on.
He deals at length with problems associated
with worship and the need to keep it
recognizable by the wearing of a clerical
collar and/or alb and stole at all visits, so the
person can recognize the 'vicar', and gives
some sample services which could be used
with those in residential care.
One particular section that struck a chord
was when talking with carers, not to talk
about loved ones unless very sure about the
relationship. Many a loveless marriage in
latter years has nearly come to grief with
the onset of dementia, with the carer being
placed in a role that he/she did not ask for
and definitely did not want, but doing it
purely out of guilt and duty.
Caring for people with dementia is
extremely demanding, especially when the
carer is on their own with the person 24 hours
a day and 7 days a week, and there is much
that the church can do to help the carer, if
not the person themselves. Help them not to
lose contact with their church, their friends
and neighbourhood, be aware that there may
be great financial problems and that this
perhaps isn't the best time to ask for a large
increase in their giving, appreciate that there
may not be time to bake as many cakes for
the fête and take them one instead. Be aware
too that the carer may be covering up for the
person with dementia and therefore may be
reluctant to let people know just how bad
and difficult things have become.
This book makes one think, and it also
encourages one to ask more questions, but it
doesn't help one to deal with personal guilt
that one didn't do more to help before death.
A copy of this book would be a welcome
addition to a church library and may help
more people than expected.