|
Main Page |
|
General Information
|
| Children's Stories |
| Medical Information |
| Support Information |
| Poetry Collection |
| Contact OAUK |
ORGANIC ACIDAEMIAS UK
We can be found at 5, Saxon Road, Ashford, Middlesex,
TW15 1QL,
+44 (0) 1784 –
245989
Copies of this information may be obtained from
the above address. Please send postage to suit 1st class letter mail
rates.
Note that most of these pages have first appeared in the OAUK
Newsletter published from 1984 onwards, and some may be rather dated.
ORGANIC ACIDAEMIAS
UK is a small group formed in 1984 covering a variety of related, but rare,
conditions. The group aims to provide support to parents who have children with
one of the disorders in this group by linking parents with others and by the
publication of a regular newsletter and occasional pamphlets of topical
interest. Membership is free to parents, others are asked to pay a small, once
only contribution towards costs.
We do not support
research projects, nor are we involved in fund-raising.
If you want to
find out more, please contact us at the address or telephone number above. You
may wish to become members, or simply wish to put into contact with other
families in a similar situation to yourself. Any information you send to us will
remain confidential unless you request otherwise.
Organic Acidaemias UK is a contact group for parents of children with inherited genetic diseases of protein metabolism of single or groups of amino acids. Examples of disorders are Methylmalonic Acidaemia, Maple Syrup Urine Disease, Propionic Acidaemia, Isovaleric Acidaemia, Argininosuccinic Acidaemia, Gluteric Acidaemia, Hydroxymethylgluteric Acidaemia and Ethyl-malonic-adipic Aciduria.
We offer telephone support from 9am to 9pm on +44 (0) 1784 245989.
OAUK ACCEPTS NO
RESPONSIBILITY FOR ADVICE ON THIS WEBSITE.
ALWAYS CHECK
DIETARY AND MEDICAL FACTS WITH YOUR PROFESSIONAL ADVISER