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Awareness activities

Raising awareness amongst physicians, the general public and the government is an important part of our work.
We hope that cadasil sufferers and their friends and relations can help in this task.

Awareness within the UK Primary Health care sector
The following table shows the activities which have or are currently taking place to increase awareness amongst GPs.

Date
Activity
Related Link
Other links
March 2006 Program of GP awareness throught the UK starts.

Progress in contacting GPs

UK gp map

 GP awareness leaflet being sent to all GPs in the UK (pdf)
       

Awareness for the general public
The general public also need to be aware of this illness.

Date
Activity
Related Link
Other links
Ongoing Raise online awareness by getting links to cadasil sites on other websites

Links to www.cadasiltrust.org added to:

Links to this website added to:

 

  
Oct 2005

Jack Shields and the Bone family appear on regional television (North east England) program on cadasil (Oct 2005)

 www.cadasiltrust.org  
Jan 2005

Jack Shields organised the first CADASIL Awareness Symposium In Newcastle (UK) Jan 2005, gathering experts from around the world.

   
Jan 2005

Jack shields instigates the creation of the cadasil trust in the UK

www.cadasiltrust.org  

Awareness to increase government funding
cadasil needs a cure - and increased funding will help.

Date
Activity
Related Link
Other links
2006 We intend to try and get a medical assessment of the use of l-arginine in cadasil patients in the UK    
2006 We intend to coordinate efforts  to requestion MPs about the state of cadasil research in the UK as it is currently woefully inadequate.   Find your UK MP
Nov 2005

Alan Beith raises parliamentary question on cadasil research

 parliamentary question The government response to this question was to refer to the national research register which it said contained 'several' cadasil projects. There is in fact ONLY ONE project into understanding cadasil in the UK at this  time.