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Cadasil in the news..

Cadasil in the news......

 

(Nov 28th 2006) Rare Diseases march in France        

In road for the 7th one Walks rare diseases!

This year again some 2 000 walkers: sick, parents, children, near, friends, neighbors, will cross Paris, all unite under a same banner, with to the heart the cure hope, united in their fights to do to advance the research, develop the new treatments, to fight against these diseases that kill, that injure, that handicap.

For this seventh one Walks, the Saturday December 9, you can here and now to note that gathering will be done, as the preceding years, to the hospital Broussais, but earlier that usually, at 13 o'clock 30. Thus, this year, a big party of the MarketWill unfold itself before the night. After traversing more of 8 kilometersr through Paris, the walkers will arrive to the Trocadéro. As the preceding years, the Faculty NeckerWe will welcome for a well deserved halt: the occasion to resume forces.

(translated from french via www.freetranslation.com)

 

(June 10th 2005) Disease Mutation Tracked Down, Ending ‘Curse’ for Colombian Families                  

At the suggestion of his adviser, neurologist Francisco Lopera, Arboleda-Velasquez began studying CADASIL during his neurology internship in the last year of medical school at the University of Antioquia in Medellin, Colombia. By the end of the year, he had tracked down 1,000 members of one extended pedigree—the largest known CADASIL family in the world—and found a second, smaller family with a more aggressive form of the diseaseRead More...

 

The sea inside                               

A film in which one of the leading characters suffers from cadasil. See film review.

 

 

 

 

 

 

 

 

 

 

 



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